Jacy's MRI this morning

Jacy had an MRI this morning... For the past couple of weeks she has been complaining that her legs are going numb. This is especially scary because of her tethered cord. Instead of her spinal cord "floating" in the spinal column, the end of it attached its self to the scar tissue from the Spina Bifida repair that was done in utero. This means that when she grows taller her cord is stretching. As it stretches tighter and tighter it can start to cause serious problems, such as loss of leg function, movement, and strength. Numbness can be one of the first symptoms that the cord is stretching too much. Too check it, it requires an MRI of the spine, which for Jacy, means full sedation. We have done this many times before, but this time there were some complications. She wasn't breathing very well once she was sedated and it was necessary for them to put in a breathing tube. The tube was removed shortly after the MRI scan, which was about 40 minutes long, but she continues to have trouble breathing. I am currently with her in the recovery room..and we could be here a while, even over night for monitoring. Her oxygen saturation should be at 98-100 percent, and Jacy is around 88-90 percent on room air even after 3 breathing treatments. She also got sick and threw up during the beginning stages of the recovery, which has never happened to her before. She just looks so sad. Please keep her in your thoughts and prayers. She is a strong little gal and I am so proud of her! I LOVE YOU JACY!
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Update: 2:10pm- Jacy is finally awake. We have been blowing bubbles and eating Popsicles. Her sats are much better, but not as high as they would like them to be. She is in the 93-97 range. They have made the decision to admit her overnight. Now we are just waiting for a room.
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Update: We had a bit of a rough night, with oxygen saturation levels between 84-91, but Jacy is home now and doing great! We had a fun "Girls Night Sleep Over" in the hospital and she was thrilled that she could call room service to have pudding delivered to her whenever she wanted. On Friday morning she was feeling much better, so I was able to give her a shower. The IV port was in her foot, so we covered it with a sock and a plastic baggie with tape to seal it. Jacy thought we were a little crazy. You can tell from the picture that she was back to her silly self making faces at anyone who would pay attention. She was discharged around 12:45 on Friday afternoon. She has an upper respiratory infection and there is no medication that will treat it. They explained it as "pockets" that are collapsed in her left lung from all the gunk inside and the only thing she can do is cough it out. They wanted to her run around and play so that she would get out of breath and have to breathe harder than usual. A prescription to run around and play...she certainly didn't argue about that! Thank you to everyone who has checked in on her and sent their prayers and well wishes her way. We appreciate all of you so much!
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p.s. We won't know the results of the MRI until November 3rd. If it is the cord causing problems, surgery will be scheduled to detach the cord from the scar tissue.

Comments

  1. I will keep Jacy in my prayers!

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  2. Praying for you sweet Jacy. Love you all bunches!

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  3. We love you sweetheart. I'm praying for you and thinking about you.

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  4. Anonymous3:41 PM

    Saying prayers for Jacy. God has her in His good hands. I love her so much and is like family from day one. God bless, Serabias

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  5. Oh Hugs Jody!!!!!! Sweet Jacy is in our thoughts and prayers!!!!

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  6. she is in our prayers...lily will even remind me if i forget, she enjoyed meeting her and would like a play date some time.

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